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Well since i resided myself over to living with it and never letting a surgeon carve me up again im better than ever. You dont need to except treatment or have surgery but as a precaution to make sure it is just an anal fistula and no other issues. But imagine living with one and having to keep it clean 24 hours a day. The journey since then can only be described as a rollercoaster. For many, a fistula is a temporary problem, fixed with one surgery. For others, the fistula is much more complex and difficult to fix. Intermittent surgeries and living with seton in place become the norm. Page 1 of 3 - living with a fistula ! - posted in fistula support hi all. I am 41 years old (female) living with a fistula since january 2009. The story is long but heres where i am now since october 2009 i keep the original opening open by poking the fistula to keep it draining daily. So, i reached out to the ibd community (in particular, those living with fistulas and abscesses in the abscessfistula support group for women that im a part of) and asked them to share their top tips for managing life, day in day out, with the uncomfortable nature of this condition. If your fistula surgery is more complicated due to the location of it, your doctor may need to cut a small portion of your sphincter muscle during surgery. Are there different types of fistula? There are quite a few different types of fistulas. Those most commonly associated with crohns disease are described below. Anal (also known as perianal fistulas) connect the anal canal (back passage) to the surface of the skin near the anus. A few months ago, i decided to write about living with a fistula. Little did i know that it would become one of the most-read pieces ive ever written! So i wrote about it again for crohnsdisease. I asked lots of you to take a second to fill out my big fistula survey to share your top tips and advice to help others. When fistula interferes with your life, get help if your bowels and urinary tract are like a plumbing system, a fistula is like an untrained plumber.